Yummy Produce,YES!!!

Headed to Trader Joe’s today to get more greens, fruits and veggies.  Yay!  I’m excited to start a daily juicing routine again and experiment with different kinds of yummy greens and other ingredients in my blender, and also learning to “not” cook/prepare raw foods in the 28-day raw foods on a budget bootcamp coming up soon.

veggie pyramid

I scheduled to meet with the physical therapist in a couple weeks and will meet with another patient navigator that works with young survivors from Seton on additional resources I can utilize, even aside from diet and fitness.

We have a 3-day weekend to celebrate Martin Luther King’s birthday–Dr. King, YES!!!  I thought maybe I’d make a dent in outlining and starting to write initial draft chapters for my book.  Good plan!

I’m also thinking of entering the BCRC’s 2014 Art Bra Austin runway show, as an artist, not a model (although they need entries for those as well).  Maybe I’ll get some of my other girlfriends involved.  Yes, another good plan!  I’m full of them today. ;-)

 

Transformation is Happening in Every Moment


When the Japanese mend broken objects,
they aggrandize the damage by filling
the cracks with gold. 
They believe that
when something’s suffered damage and
has a history it becomes more beautiful.
~ Barbara Bloom

Often we are fully aware of the moments we are in true transformation, but many times we are not.  Sometimes transformation is so subtle, it often doesn’t hit us until later.  I’ve realized, even with great setbacks (most recently I’ve been eating everything in sight and have gained weight, I know I have), I’m still transforming for the better, and in real, long-term ways.  My thoughts and beliefs about myself and the world around me are changing.  I’m striving, even in the smallest measure, to live by intention and not by habit.  And even when I fall short (which is all the time), my thoughts about falling short are different too–More of an “okay, that didn’t work” or “man, I fell off the wagon there, but it’s going to happen so get back up and keep going.”  I choose to no longer beat myself up about it or go spiraling into negative thoughts (which, the saying is true, being negative does absolutely nothing for you!  I should know as I WAS the resounding poster child for negativity!). 

We all have negative thoughts and I’m sure I will continue to have them, but I’ve learned not to let them control my life.  I’ve been made even stronger now and developed more awareness, and even gained some tools to keep me moving forward and away from the negative thinking.  Now, I look more toward how I can do things better or just differently.  Past events don’t plague me as they used to and I now see the truth behind them instead of the lies I had previously told myself.  I also see how incredibly strong I am to have lived through such tragedy and adversity throughout my life.  I used to believe so many things were my fault.  I felt so damaged or that somehow I was genetically flawed and entirely unfixable.  Well, LOL, let’s face it, I really am genetically flawed (albeit in a different way); however, aside from the real genetic mutation that has devastated my life (but that I am living and thriving through) the negative thoughts don’t have the stronghold they used to. 

As with any extreme hardship, you have two choices: (i) either you become so destroyed that it’s literally impossible to come back from; or (ii) you buck the hell up and gain an entirely new, more purposeful and positive prospective on life.  THANK GOD I think my ticket is for the later train!  And maybe I’m just not willing to be as critical on myself or about my choices anymore.  I have been beaten down and virtually decimated and now I’m working on being built back up even stronger.  As if my damaged body and emotional well-being lay motionless on a large, metal table being torn open by machines slowly working to methodically replace parts of me with stronger, smarter and more resilient ones.  Such as fire can devastate a forest, in time it brings renewal and even more, productive life.

Acceptance comes with grace and humility, and surrender brings great power if you can be still long enough to see it.  I can now see clearly the message behind the passage “[m]y grace is sufficient for you, for my power is made perfect in weakness” because I’ve now lived it.  I am grateful for that as most people will never experience this type of revelation.

A year or two back, I started an outline of my book and recently realized I must continue that project.  It is becoming increasingly more important to me.  A few days ago I wrote a friend about potential titles.  She’d previously read initial draft passages from my book, for which I already had a title.  She encouraged me to think about sticking with the original title.  I think now that she may be right and that I’m on the right track as my current metamorphosis may play into the original title well, but more on that later. :-)

Damn old fart – WHAT?

So my hair is coming back.  Yay!  Only thing is it appears to be coming in gray with white hairs here and there.  Yikes!  I’m not old yet–Way too young for gray and white hairs!!!  Ugh! :-(  I guess at least it is coming back in.  I’ve noticed my eye lashes and eye brows coming back too.  I had another follow up with my surgeon today and so far everything looks good and seems to be healing fine.  That’s all good news!

Stanford’s New Computer-Based Decision Tool for Women with BRCA Mutations

http://brcatool.stanford.edu/

The following is taken directly from the above-referenced link:

Purpose and Intended Use:   This decision support tool is designed for joint use by women with BRCA mutations and their health care providers, to guide management of cancer risks. This tool is not intended to replace any aspect of medical care. Testing for BRCA gene mutations, and managing hereditary cancer risk, is a complex process which should be supervised by expert medical professionals. The goal of this tool is to inform discussion between providers and patients about options for reducing cancer risk.

Intended Population:   The decision tool calculates the probability of health outcomes for women ages 25-69 who carry a BRCA1 or BRCA2 mutation, and who have never had the following: 1) cancer; 2) screening mammograms or magnetic resonance imaging; 3) preventive surgery to remove breasts, ovaries or fallopian tubes; 4) preventive medications such as tamoxifen or raloxifene.

Assumptions Made:   The tool’s calculations result from a computer simulation model, not a clinical trial. The decision tool uses data from clinical studies of BRCA mutation carriers on cancer incidence and the efficacy of screening, preventive surgeries, and treatment, and data from the general United States population on survival according to breast cancer stage, hormone receptor expression, and grade. Long-term validation of the tool’s model-based estimates is warranted. Articles describing methods are available on the publications page. Medical terms (in red font) are defined by clicking on each term, and in the glossary.

Please click on the above link to find out more and to use the decision tool.

No pain, No Gain

Dag-blamitt! :-)  I’m still having significant pain issues.  Why does it take so long to heal?   I’m ready to start implementing changes and getting into a good fitness routine.  That’s hard to do when your body doesn’t yet want to cooperate.  Some things I can start implementing.  Now that I found my wallet, it’s time to revisit Trader Joe’s and get transitioned to a more macrobiotic/raw foods based diet.  I feel I’m just going to have to work through the pain, grin and bear it so to speak, as that may be the only way to heal.  I have to move the upper part of my body.  I think if I’d chosen a full mastectomy vs. skin-sparing, I wouldn’t have such pain issues.  I think the majority of the pain comes from the remaining skin bunching and adhering to the chest wall, basically scar tissue type pain.   Hopefully, I’ll get into the Star Program at Seton Hospital that my oncologist’s office has referred me to and start physical therapy to get me into better shape to start a good fitness program.

New Pre-Surgery Treatment Combination More Effective For Women With Triple-Negative Breast Cancer

Adding the chemotherapy drug carboplatin and/or the antibody therapy bevacizumab to standard presurgery chemotherapy increased the number of women with triple-negative breast cancer who had no residual cancer detected at surgery, according to results of a randomized, phase II clinical trial presented at the 2013 San Antonio Breast Cancer Symposium.

An increasing number of patients with triple-negative breast cancer are receiving chemotherapy before surgery, a treatment approach called neoadjuvant chemotherapy. In about one-third of these patients, no identifiable cancer cells are found in breast tissue and lymph nodes removed at surgery performed after the neoadjuvant chemotherapy. These patients are said to have had a pathologic complete response and have a much lower risk of cancer recurrence compared with patients whose cancers do not respond this well to the neoadjuvant chemotherapy.

“Our study was designed to find out if adding either carboplatin or bevacizumab to standard preoperative chemotherapy would increase the percentage of patients in whom cancer is eliminated before surgery,” said William M. Sikov, M.D., F.A.C.P., associate professor of medicine at the Warren Alpert Medical School of Brown University in Providence, R.I. “We are excited to report that adding either therapy significantly increased the percentage of patients in whom cancer was eliminated from the breast, and that adding both was even more effective.

“While our results show increases in pathologic complete response rates with both carboplatin and bevacizumab, we do not yet know how large an impact, if any, these differences will have on cancer recurrences or deaths. Although the study is not large enough to detect significant differences in these endpoints, we plan to follow patients for 10 years after their surgery to see if patient outcomes suggest long-term benefits from the investigational treatments.”  Click here (http://www.hopkinsbreastcenter.org/artemis/201401/14.html) to read the rest.

The above was taken from an e-mailed article sent through the Pink Ribbon Cowgirls.

The Odd Couple

So, the pain is still fairly prominent.  Since I’ve gone back to work, I’ve resorted to popping Tylenol and Aleve.  The prescribed pain medication makes me way too sleepy.  It’s not just the pain.  It’s the totally bizarre feeling of having to get used to a hallowed, morphed chest when you’ve been used to having boobs.  Not just boobs, but D cups.  The prosthesis doesn’t really mask the oddity of this feeling either.  And it seems just as bizarre to have pain and numbness at the same time.  Since my surgeon left the breast skin envelope, it’s all adhering to the chest wall, only there’s so much that it’s bunching up in places.  She did state this would happen.  It’s most annoying at the sides where my arms brush against it.  She stated that if needed, she could go back and take off more of the breast skin that was left, but leaving it this way for now will likely give me better recon results, so as long as I keep in mind this isn’t permanent, but very temporary, I’m okay.

The good news is I found my wallet.  It was on my kitchen table in a bag of firestarters. :-)